Ani's Home

We lost our daughter Ani to Lupus a few days after her 12th birthday. The virtual world of the Internet helps to keep her moments alive and share them with others. The first posting was on August 2005 To read all past postings from 2005 onward, please go to https://toani.blogspot.com/ and you will see all the previous entries listed. Click on the one you wish to read.

Monday, November 28, 2005

Over The Atlantic

As I leave the evening lights behind and in the uncomfortable airplane seat try to attend to my crazy life, I always end up with the same fear: Maybe it was not time yet! Maybe, just maybe. Could it be possible that we were all wrong? That we misread the signs; that we did not care. Then, I look out of the plane window and try to reason with myself. No. That is ridiculous! No; we know better. And yet, it is dark outside the plane. And it is now always dark in me.

A feeling that does not go away. An "away" that becomes an ever-present feeling. Other sorrows seem now bearable; joys do not exist. Just moments of lesser pain. One feels guilty to have smiled; one feels lonely when smiling.

I do know the answer to the above questions. I do know that I will ask the questions not to get answers but because I have to. Because that is how my life may now be. Because I already know the answers to these questions!

...Extreme feelings once helped me find that poem we all want to write. Intense moments often dictated the self-discovery we all fear. And yet, when I had to choose, it was always for the un-expected and the un-known.
Today, I have an extreme feeling. Perhaps the most extreme of all feelings and thoughts. And strange enough, when I am alone in a narrow seat at 36,000 feet, I dream of useless moments where neither pain nor joy ever found their time. But I know I found that oasis one wants, to quench a thirst suddenly unknown; to sit under that shade away from the light.

Funny, I know where all this is going. Yet, as it goes there, I seem to find myself surprised by its pace; by its direction. Is this a game?
Is there a reason why I should pretend not to know the direction?

And suddenly, I realize that what I just did is ask the "why" question! I asked the single most disturbing question which has no answer. In fact, I did ignore the rules: one has to ask the “what” question only and then wonder if there is a "why" question for everyone else to ask. Or, if only the select ones can reach that level of self punishment!

So, I look out of the window, this time with more acceptances. This time, I seem to know my limits. This time I will resist asking if I already know the answer. This time, I will only look out of the window for the sake of looking, not with any hope of seeing. This time, I know that I will always wonder if it was time. And, that I will still hope that I am wrong, even when I know the answer….

Delta # 90, NY to Barcelona

Nov 12, 2005

PS/ Written after reading a report that a new immunosuppressive medication has been successfully tested in patients with Lupus and kidney failure.

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